Tagged: “Community”

Let’s give Kate Hope to Walk

Dear all, we are Charmaine and Daniel and we are reaching out for your generosity once again to help our daughter Kate.

Kate is a 4-year-old girl who suffers from a very rare disease called Tatton Brown Rahmann Syndrome. Kate is one of just 200 people who are diagnosed with this syndrome worldwide, and has a mutation which makes her the only case in the world.

Apart from the difficulties related to the syndrome, she had to go through more than ever imagined. In 4 years, she has already undergone three surgeries: open heart surgery, Achilles tendon lengthening, and abdominal wall defect. The last operation is a very rare defect that one finds on the body.

Thanks to your past contributions, Kate was able to attend various therapies every day, both in Malta and abroad, to improve her mobility. Unfortunately things are getting worse, and she has now been diagnosed with another rare disease called cone dystrophy – this can put her vision at risk. Although she already has difficulties to see clearly like we do, this disease is much worse and can lead to blindness.

Given that with this syndrome she is growing at a much faster pace, the amount of therapies that she is undergoing are helping her to improve, but unfortunately these are not enough. She requires a crucial feet surgery to giver her stable feet that can go flat on the ground and provide stability for balance, strengthening, better weight-bearing long term, and lead her to walking.

In addition to this, we will also have to invest in a robotic walking machine in the near future to help her practise steps and be able to walk independently.

Bearing in mind that she might lose her eyesight, for Kate to walk is imperative for her independence. We are therefore asking for your help so that together we can fund her surgery. This is going to be carried out by the specialized doctor Mr Matthew Dobbs at Paley Institute in Poland.

The estimated cost of this surgery and post operation therapies and other therapies to keep us on track during the 5 weeks abroad are of €36,500.

We want to thank all the generous donators that have already contributed.

The remaining estimated sum to reach our goal €15,000.

To donate, please choose the amount that you wish to contribute from the amounts on the right-hand column. Should you wish to donate more than the sum indicated, you can edit the amount in the text box.

Thanks for your support, kindness and generosity. With your help, you can give a better life to our daughter, Kate.

Much love from Charmaine, Daniel, Kate.

Darkness Into Light

Darkness Into Light is a tradition that began in Ireland in 2009 for suicide prevention and awareness, signifying walking from darker days to lighter days together.

Now happening across 19 countries with 400,000+ attendees, we bring this to Malta on the 6th May with the challenge to walk from Valletta Triton Fountain at 3:15am, and arrive in Sliema in time to meet the sunrise with a catered breakfast provided.

We will be raising awareness and fundraising for the mental health support charity “Walk and Talk”. This is a registered VO that provides monthly walks in Malta for those struggling with Mental Health. Your donation will help us to continue and expand this invaluable work at a time when this support is needed more than ever.

The full walk will be fast paced, but we aim to remain inclusive in our events, so those unable to take on the full route can join at any point. A map will be provided on our website with predicted times to arrive at certain points, or you are also welcome to join us for breakfast to watch the sunrise in Sliema at 5:30am.

Please help us to help communities across Malta – every donation really does make a difference!

Walk & Talk – VO 2305

New Hope for Andrea to Get Back on his feet